I Need Get Out of Here

Lisa is comfortable now, finally sleeping. She wants to go home!

Amy: Hi Lisa, how are you?
Lisa: I NEED TO GET UP and GET OUT of here!
Amy: Lisa, you need to get better, you may be here for another week.
Lisa: I CAN'T stay here for another week!
Amy: Can I take a picture of you so you can see why you need to be here!
Lisa: YES
Amy: You may be moved to another room depending how you do today.
Lisa: GOOD!
Amy: Lisa, we will be here with you the whole time.
Lisa: I am resting now!

Lisa has a room-mate as of early this morning. I call him "uber-moaner". Last night we had "nazi-nurse". Just my luck. Uber-moaner is causing her blood pressure to go up and she is not happy. She's glad nazi-nurse is gone! She asked for a radio to drown out his moans.

Saturday at 8am

Surgery has been scheduled for Saturday 8am.

I talked to Lisa today on the phone... She was wondering where I have been! I got a call first thing from Karla to call her b/c she hasn't heard from me. I have a knack for calling when she is asleep...

Lisa: Hello
Amy: Hi Lisa, what are you doing today?
Lisa: Not much, just taking it easy (too funny, like she has a choice)
Amy: Glad to hear that. Are you getting bored?
Lisa: YES! Are you coming soon?
Amy: YES, I will be there Saturday
Lisa: Been wondering about you
Amy: It's Olivia's recital week, it's crazy here, hair, makeup, ect.
Lisa: Laughs... (I'm sure she remembers growing up going to recitals)
Lisa: I bet, when are you coming?
Amy: I will be there as soon as I can on Saturday!
Lisa: Well I hope so!!!
Amy: Just look for me when you get out of surgery
Lisa: I WILL
Amy: I Love you! Let me know if you need anything
Lisa: Ok.. I Love you too! CLICK....

What a joy it is to talk to Lisa! Nothing has changed, she's inquisitive as ever and happy to here my voice! I love that girl! I was in tears this morning b/c I haven't seen her since the beginning of the week, but I am so excited to spend the night with her on Saturday!

Lisa's worries

After Lisa got her hair cut, Karen said that Lisa was very upset. She (Lisa) read the letter that was emailed to friends and family. We didn't keep anything from her; but we didn't totally explain it in her terms. When I sat with her in the Dr's office a few months ago, I just assumed that she would remember...she didn't. Short term memory.

She didn't answer the phone when I tried to call her, eventually Karen got through to her. Karen told Lisa that with every surgery there are risks like when she had Parker, she could have died. Lisa was very quiet. Then Karen said to me, that Lisa said the sweetest thing...

Lisa: "Karen, could you talk to Dr Tracy and tell him to keep my memory in there?"

When I talked to her, she said about the same thing, but was really worried that she wouldn't remember that on Tuesday, Thursday, Friday and;she wouldn't remember how to get to her favorite place to eat breakfast.

I asked her if she was scared and she answered "yes" I told her that that was OK, we just need to pray about it. I told her that the reason that she was having this surgery is because she forgets sometimes that she does have seizures and that the more she has, she wouldn't remember things. She understood. I explained that the doctors want to try to help her not have seizures so that she can continue to remember. She was fine with that answer. Simple.

I asked "Can I pray with you on the phone?"
Lisa,  "I'm watching Wheel of Fortune" (every single night at 6:00)
me " can we pray?"
Lisa" go ahead" she was irritated with me. 
me " OK, close your eyes and fold your hands" 
Lisa "OK" with a sigh of irritation, so I made it quick.
Me " Dear God, thank you for Lisa and for her seizure surgery. Please help Lisa not be worried and to pray to you when she is. Amen. "

Lisa " Bye, love you"
Me "call me anytime you are worried, I don't care what time it is...I love you. Bye" 

She is so cute. I need to remember that she is so child like and that she really wants to be heard...we are listening Lisa, we just want for you what you and Mom always did. No more seizures.